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Mary-Louise's BLOG
From the
Mary-Louise Pawlowski Care Page at the Medical College of Georgia
Posted Jan 28, 2010 10:30pm
I'm sooooo sorry. I haven't been on in what
seems like forever and a lot has happened. So last Tuesday I was
sitting in English and I had this terrible pain in my left kidney
area in my back so I called my mom to come get me and I was running
a low grade fever which was odd because I was on an antibotic for a
urinary track infection. So my mom called the clinic and they told
me to come in the next day(Wednesday). So we did and the dr. said
that the pain was probably from the large bladder stone they found
on the last scan. So the dr. called the urologist and he was out of
town and he said he would call us on Friday. So the dr. at the
clinic went ahead and scheduled an appointment with him on that next
Thursday(today) because I had an appointment with Dr. Hatley already
to set a date to get my port take out. So that Friday the urologist
calls and he says to call him on Sunday because we needed to take
the stone out and he said that it would have to be on
Friday(tomorrow) because he was completely booked but to call him on
Sunday if I couldn't make it to Friday and he would schedule me on
Monday as an emergency case. So Sunday came and we decided to wait
till Friday. So we asked Doctor Hatley if we could get the port
taken out the same day and he said yes!! So I'm getting my stone
removed tomorrow and I'm being deported(haha Mrs. Cindy)at 8:30
AM!!!! Sorry this update is way overdue!!
And the most visits goes to Keith Claussen at 258 and second place goes to Len Ferguson(don't think I spelled that right) at 257!!!!!!!!
Posted Jan 18, 2010 2:34pm
Ok so last week I went in for a count check as usual and my mom asked when I can get my chemo port out. And the doctor said since my scans were good we can do that soon. So on January 28th I have an appointment with Dr. Hatley to set a date for my port removal!!!!!!!! And schools good.... but thats about it. And if you live in North Augusta enjoy this nice weather!!
Hey.... well I had my scans two weeks before Christmas Break and we got the results and everything looks fine except they think they found the cause of my stomach problems.... a bladder stone. they said its too big to pass so we are going to have to find a way to get it out. but its a HUGE relief that we now know what it is. I have a doctors appointment this Wednesday so we are going to see what the plan is. And school is going well and the 2nd nine weeks ends next week. My Christmas and New Year was wonderful and I hope everyone else's was too.
Alright sorry it's been so long... but I've been really busy with school. So about a week ago I had my NG scope done and they didn't see anything... and I had my scans and we haven't gotten the results back yet so we are waiting on those. I also had a MRI and we are waiting on those also. So my Christmas break has officially started at 2 o'clock today.. we had exams since tuesday and man am I happy those are over. I did really well I think. I'm going to Auburn, AL for Christmas and to work some camps and then December 31 we are flying up to New York so I can see my family and Chelsea!!!!! So I will probably post again after that. I hope everyone has a safe and wonderful holiday!!!!
MERRY CHRISTMAS!!
Ok, I have some news. I was sitting in science class yesterday and I started to feel sick. So I asked Mr. Champion(science teacher) if I could go to the bathroom. So I went and nothing happend so I wiped my face with a cold paper towel and went back to class. 2 minutes later I started sweating bullets again and felt sick to my stomache and I was in pain. So I asked Mr. Champion if I could go call my mom and so then I went to the office. I called my mom and she was at the bank and if you live in North Augusta and bank at Wachovia then you know it takes forever to get through the drive-thru. So I was walking back down the little hallway to go back to class when I almost collasped on the floor. So I went into Mrs. Stallings(guidance counselor) office and I sat there crying because my lower abdomin was hurting sooooo bad. I can't tell you how bad it hurt. I was leaning forward, screaming, and bent over a trash can because it hurt so bad. So she called my mom again and asked if she could give me some advil and mom said yes so I took some but then the pain got even worse. I imagine that is what giving birth feels like. It felt as if something were eating me from the inside out, and stabbing me right in the stomach over and over and over again. So I told Mrs. Stallings that I needed to lay down so we proceeded to walk across the hall to the nurse's office but I felt like I was going to pass out so I barely made it by holding on to Mrs. Stallings and I layed down on the nurse bed/table thing. I was screaming and crying and finally I told her to call an ambulance and then my mom walked in and said Mary-Louise come get in my car we're going to the hospital, I was fine with this because I was in sooo much pain. I tried to get up but the pain was so excrutiating I couldn't walk so Mrs. Stallings called an ambulance and finally it came and my mom and I got in and went to the emergency room. Then I got some pain medicine and Dr. Hatley came in looked at me all perplexed like and said that I need to have a CT scan. So I had my scan, after drinking all that nasty junk, and it showed the same thing it did last time. I had an absest in my left rectum area and some inflammation around my apendix. In July they thought the inflammation was due to me about to start my lady thing but I still haven't started back since I came off the medicine in March that maked it stop. So the ER surgery team said my apendix probably needed to come out but Dr. Hatley said no he doesn't want to start taking things out that might not be causing the problem. So then at 12:30 a.m. this morning I was discharged. I have no idea what caused the incredibly killing pain in my stomache yesterday around 2:40pm but I sure hope it doesn't happen again. But I wanted to let everyone know I am doing okay now. My stomache still hurts a bit but not as bad as it did. Also, my scans are scheduled for the Wednesday before Thanksgiving. I am also scheduled to have a MRI of my stomache to see what the heck is up. I hope that this didn't scare you but I'm doing okay now. Thanks for reading this extra long update.
hey well i got back from disney world last tuesday and it was awesome!!!!! i had sooo much fun. but now i have to get back to the real world of school and homework. that stinks but its true. I have scans due but of course mcg hasn't scheduled them. so hopefully they will get to work and do that. but i shall inform u when i find out when they will be. bye
Ok well my last update said I like to write e-mails CHRISTINE!!!!!!! It wouldn't give you the correct answer if you go to free translate.com CHRISTINE! But I had fall break yesterday and today so ha no school!! I'm doing well so I'll post again later. Oh and I got the best birthday present ever!!! I'm going to disney world on October 22! I've always wanted to go in October and see all the bad witches and people come out and go trick or treating so we get to go!!!! yay. and I'd also like to thank Len for my abercrombie and fitch gift card. I was going to write you a thank you note but i haven't had time. sorry. BUT THANKS ALOT. Love you all, I have some no school things to do!!! :)
Hey. school went well this week. im going to auburn this weekend and i have to give the prayer pager back because the church needs it because there is a waiting list and im doing fine so itll do someone who is struggling some good, so dont page me anymore if u dont mind. i enjoyed it while i had it. but i'll post later. adios amigos. a mi me gusta escribir los electronicos. haha tell me if you can figure that one out!!
Posted Sep 18, 2009 6:00pm
Well I'm truly sorry I haven't posted in a while, but I've been kind of busy. But the driving isn't going so well. I give up trying to learn on a stick. Although that creates a problem. The only car my mom has to drive is the Jeep. And Christine is never home, which is sad, so I can't learn on hers. So we are stuck in a rut. But on the other hand, I had a doctors appointment for my counts and they are fine. Then I had another doctors appointment with a gastro-intestional doctor, because my stomach is always hurting, and he found out that I have an infection. So they gave me some medicine for that and hopefully it goes away. But other than that school and everthing is good.
Posted Aug 29, 2009 9:07pm
I got my permit yesterday!!!!! I'm learning on my mom's jeep, and its a stick.... EVERYBODY CLEAR THE STREETS!! haha just kidding :)
ok well today i went to the doctor, i'm assuming that my counts are fine but today i had to have an xray b/c i've been having this pain in my right chest and back so we will find out the results of that later. nothing to worry about... hopefully. but schools good.
Well my birthday was yesterday and it was pretty good. And I started school on Wednesday and I like it. It is good to be back. I have a doctors appointment on the 27th to get my counts checked and I'll probably post again then.
Okay well I have a doctors appointment on monday to go see a bladder specialist, its just a follow up appointment. Then school starts Wednesday. I'm really nervous. And then my birthday is friday the 21st. I'll be 15!!!! That means I can get my driving permit!! I haven't even opened my manual. haha. Well I have stuff to do so I'll post later. :)
ok well i had another ct done today and the "thing" in my rectal wall hasn't gotten smaller or bigger so that's good. they still don't know what it is but they are treating it as inflamation with antiboitics. other than that i'm doing fine!
ago ok, well I saw dr. pipkin this morning and he said that he would take me to the O.R. and so I was taken back and he said that he couldn't see anything because in order to do so he would have to open my skin graphs and he didn't want to do that. so he decided that he would give me antiboitics and that on monday i would have another scan and see if it has gotten smaller. if not he would do a needle biopsi. but i'm doing good and at home. thanks for the prayers, keep on sending them up!!
:(
Posted July 30, 2009 3:09pm
Well I got the results back from my scans about 30 mins. ago....
they said that they saw a pocket of fluid in my left rectal wall
and that Dr. Pipkin(surgeon) wanted to take a look at it tomorrow
morning and that he might need to take me into the o.r. but other
than that everything else looked good. So I'm sad of course but you
have to take life one day at a time.
Posted July 29, 2009 4:42pm
Hey guys I had my scans yesterday and they went well. I won't
get the results till later this week or next week. I also got my
counts checked yesterday and they were all good. So when I get the
results back I will post an update.
Posted Jul 24, 2009 4:01pm
Hey guys just a reminder that I have my scans tuesday! I'm
nervous of course. Please pray for good results.
Prayer Pager number
Posted Jul 18, 2009 3:32pm
Alright, the number for the Prayer Pager is 334-742-5230. It
will be a girls voice saying you have reach the Auburn United
Methodist Church Prayer Pager at the tone please dial 111#(that
symbol is pound). and then I shall get the page. Well right now I
am at camp so I must get back to work. Thanks for still praying for
me!
Prayer Pager
Posted Jul 17, 2009 2:33pm
Hey everybody, I'm in Auburn and taking a break from working so I decided to post an update. I just got my prayer pager like 2 weeks ago, but it was dead so I just put new batteries in it like 3 days ago, and its gone off a ton!! So I want to say thanks for paging me when you pray for me. It helps me understand for real how many people pray for me. Alot of people say they do but I never really understood untill I got my pager. I don't have it with me right now, but later if y'all want the number so when you pray for me you can page it just write a message and say so. Well got to go. Leave me some!
Posted Jul 12, 2009 5:32pm
Well I got back from the beach today, and it was alot of fun. I
wanted to let y'all know that I have my scans July 28. so that'll
probably be the next time I post an update. I am going to Auburn to
work camps this week and the next week. So I'll post later.
Posted Jun 17, 2009 1:58pm
Hey guys its me!! Wow I haven't been on here in a looonnnggg
time. So I have lots to share.... first I am walking independently
since the 2nd week in may I guess. And I went to New Jersey with my
Mamaw(my mom's mom) and Daddyfred(my mom's stepdad). I went all by
myself, without my mom. That was the first time in a while that I
had been without her for 2 weeks. It was good to be away and get
some independence back. Now it is Summer and I'm sooo happy!! I
recently got my counts checked last Friday, they were all good. I am due to have scans either at the end of this month or the end of July, whenever they can fit me in. I go to the beach(Edisto) on July 5th for a week with my whole family!! I'm so excitied. Then I'm going to Auburn to work some camps for my dad. Christine recently had knee surgery b.c three years ago she hurt it really bad and now they found out she tore the legiment, so they fixed that last thursday. I am going to start highschool in the fall this year!! Everyone is asking what grade i'll be in, and that would be 9th. So now the plan health wise is that I go get my counts checked once a month and have scans every 3 months. I'm doing Awesome and I hope everyone has a nice and safe summer!!!
Posted Apr 23, 2009 8:39am
Sorry I haven't posted a new update in a while but I was
discharged on April 1st. So now I'm home and loving it.
Posted Feb 27, 2009 3:46pm
It's Mary-Louise here and I'm just posting an update to all of those wonderful people out there praying for me. So here it goes, I am doing well and my wounds from the vancamicin are looking alot better and Dr. Hatley said my skin graph surgery will be thursday. A skin graph is where you take the top layer of skin from some place on your body and put it on top of the wound that needs it. So then after that is done the healing process begins. Dr. Hatley says it'll probably be a couple of weeks before they will let me go home. So that's about it for me. Thanks for checking in.
Posted Feb 16, 2009 12:56pm
hey its mlp. i just want to thank everyone who is praying for me and to let y'all know i'm doing alot better. hopefully i'll be going home soon. once again thanks.
Posted Dec 24, 2008 11:25am
Well I was discharged on monday the 22nd and feeling pretty good I go in on monday to get my counts checked. Have a Merry Christmas!!!!
Hey Y'all!
Well, I am laying in my hospital
bed getting chemo. I can't fall
asleep even though my nurse has
given me all the medicine to fight
nausea that she can for a while.
Stinks. So, I decided to write a
quick note. The celebrations have
started because this is my LAST 5
days of chemo. EVER. A bunch of
nurses and Kim, from child life,
came in this afternoon and gave me
cupcakes and a Dr. Seuss book called
Oh the Places You'll Go. Then they
all shot me with silly string...at
one time. My mom read me the book
and it's amazing how much it really
goes with this past year.
I know a lot of you have seen in the
news, internet, paper or heard on
the radio about the blanket warmer
gift for the clinic. My dad did the
hard part of running 26 miles, but I
wanted to send all of you who sent
donations in to RunCoachRun.org or
my foundation a HUGE THANK YOU. We
couldn't have made the presentation
Monday without all of your support.
Of course, it was my idea to give
the warmer to the clinic! I'm just
glad I may not have to use it! HAHA.
But all the kids who stay bundled up
in there, and maybe even some of the
staff, are really gonna like having
warm blankets to cuddle up in. I
wanted to include my home address in
this so I can get more Christmas
presents, but my Mom just said,
"Absolutely not." Man........oh
well. amazing how typing makes you
sleepy...
Posted Dec 15, 2008 11:38pm
Sorry I haven't posted a new update in a while, but my computer crashed. Today we presented a 10,000 dollar check to the MCG clinic for the blanket warmer and renovations. Also my counts are good and I am going in to the hospital on Wednesday for which will hopefully be my last chemo treatment. Well thats about it. CHRISTMAS IS ALMOST HEAR!!! yay. Moms not ready. ha
Posted Dec 7, 2008 11:00am
Well Friday went well I guess, I don't remember much but I do remember waking up in the hospital. My mom said the infectious disease doctor came into the clinic and looked at my toe and decided that I needed iv antibotics every 8 hours. So I was wheeled over to the hospital and they said I would have to stay at least till Monday. But SURPRISE I'm home. I'm feeling pretty good except for my mouth tasting nasty. Well I'm heading to the parade later so bye!!
Posted Dec 4, 2008 9:12pm
Well I have my outpatient round tomorrow and hopefully I will be feeling good enough to go to the Christmas Parade on Sunday. I probably won't be on my computer tomorrow so leave me messages to come back to!!!
Posted Dec 2, 2008 9:08am
Well yesterday I didn't have my chemo because it took the people at the clinic too long to get my vital signs and when they were finally ready to do it, it was already 12:30. They said if I wanted to do my chemo then I would have had to take one of my medicines home and drink it. ewwwwww. So now chemo will be on Friday.
Posted Nov 28, 2008 5:14pm
well sorry i haven't written in a while but i went to get my counts checked tuesday(the 25th) and they were good but not high enough for chemo so i am going in next tuesday for my 1 day out-patient. also when i went tuesday they think i have an infection in my second toe on my right foot because it's all red and swollen. haha so i'm on medicine for that. well thats about it. oh and i don't have to have the bone marrow test yay.
Posted Nov 21 4:41pm
Well I went to go get my counts checked yesterday and my white blood cells are good to go but my hemoglobin and my platelets aren't coming up. So Monday I won't be having chemo. I'll go into the clinic Tuesday and if my counts are high enough I'll have chemo then but if there still not and my platelets have gone up hardly any they will schedule a bone marrow test the following week. They will put me to sleep to do the bone marrow test. They are pretty concerned about my counts not coming up much. They think my bone marrow is just tired. Hopefully that is all that is wrong with it, so please send up some extra prayers.
Posted Nov 18 6:41pm
I went to Auburn this past weekend, it was good. My counts are FINALLY starting to come up. They think I will be ready for chemo next monday, but we aren't sure yet. But after this round only 1 more to go and hopefully I'll be done!!!!! yay
Posted Nov 8, 5:39pm
ok well today(Saturday) we were supposed to go to Auburn for the welcome to auburn fundraiser but we didn't go because I woke up this morning not feeling to good. I'm not feeling well because my counts are low. They should be coming up sometime next week. This coming weekend we are going to Auburn because one it's the Georgia game and two because Dad closes on his house and we can't wait to see it all done. You can still donate to the foundation for a blanket warmer for the clinic. Well I'm watching the Clemson game and it's getting pretty good so I'll update in the next few days.
Posted Nov 4, 2008 8:54pm
Well I was discharged yesterday(monday) and feeling okay
but going down hill b/c my counts are dropping. Dad finished
the marathon in 3 hrs. 48mins (remember it was 26 miles). We
also got information from MCG about the blanket warmer and
are excited about being able to purchase one from the funds
Dad raised( website for donation:
runcoachrun.ORG people org!!) One of our friends, Len
Ferguson, created a slide show of my journey so far and it's
on You Tube(www.youtube.com) if
you want to watch it click on the video tab near the top of
your screen and type Mary-Louise Pawlowski in the search
link. The video should be at the top of your search results.
Well that's about it, I go into the clinic
tomorrow(Wednesday) to get my counts checked so I'll update
later.
Posted Oct 29, 2008 2:20pm
Well I just arrived in my penthouse suite. haha yea I wish. I'm
not sure when they'll get my chemo started but it'll be sometime
today. I have just developed a craving for some sesame chicken.
yummy. well i'm getting off now. bye!!
Posted Oct 18, 2008 2:11pm
Yesterday I went to the clinic to get my counts checked and it
was sooo weird because Dr. Bell came into the room and she said
that she didn't have to give me anything(we were expecting that
I was going to need platelets and blood). She thinks that my
counts dropped and already are starting to come up. Last
Wednesday and Thursday I wasn't feeling good at all and then we
went into the clinic on Friday and my counts were fine. It was
kinda weird because my counts have never came up that fast. But
yea anyways that's about it.
Posted Oct 10, 2008 4:36pm
well chemo went well yesterday, i'm just feeling yucky. my mom found out how much a blanket warmer cost and it cost between 5,000 and 10,000 dollars so please help and donate at www.runcoachrun.org
THIS JUST IN!!!!!
My bad everyone. I posted the update below this morning but it was really an update from last week soooooo my out patient chemo(one day instead of two) is tomorrow instead of next wednesday or thursday. My apologies. Tomorrow I will find out how much a blanket warmer cost since everyone is wondering. For all of you who don't know what a blanket warmer is google it. haha just kidding it looks like a stainless steel refridgerator and it holds well my mom and i sat here wondering how many but we don't know how many it truly holds anyways it holds a bunch of blankets and keeps them nice and toasty for people like my mom and me who freeeeeeze to death at the clinic. And see now if you were to ask for a blanket it would be colder than the temperature of the room so that is why i want to get them a blanket warmer. well i am extremely tired and i must get my rest considering how many times i have hit the backspace key.
Posted Oct 8, 2008 12:47pm
Sorry I haven't been on in a while but I got out of the
hospital last sunday. I've just been feeling so well that I've
been spending my time doing fun stuff other than being on the
computer if you know what I mean. So next week I have to go in
for out-patient chemo, either wednesday or thursday. But it
won't be so bad because I only have to go in for one day instead
of two. I don't know why that is but it is. Well thats about it.
Don't know if all of you that read my updates know that MCG
is going to be renovating the children's oncology clinic. That
is where I go see my doctors in between chemo treatments for
them to check my counts, get blood and all that other time
consuming check-up stuff I have to do. Anyway, my Dad runs a big
marathon every year (last year he finished the one in Chicago).
When he was at College of Charleston he would raise money for
his baseball program, but now that he's at Auburn he doesn't
have to do that. So, we want to raise money for the renovations
at the Hematology/Oncology Clinic. You can read about the
renovation plans on MCG's website, and you can read more about
my Dad's plan at
www.runcoachrun.org.
I really want to raise enough money to get the clinic a blanket
warmer-with my name on it!- because patients like me get really
cold when we are there for a long time getting treatment. Thanks
alot, and thanks for always checking on me.
Posted Sept 23, 2008 6:18pm
Well, you know how my last update I said I wasn't feeling well? By
Sunday I was running a hugely high fever and my Mom had to take me to
the ER at MCG. My doctors admitted me and here I still am. So far all
the tests they have done, including a CT (drinking that contrast stuff
is disgusting), are negative so they aren't sure what is causing the
fever except not having any immune system right now. But, they are
giving me every medicine they can think of to help me, and I am starting
to feel a little better.
Hey Len, thanks for the awesome pics of all the PURPLE cars that were at
the show on Saturday. I wish I could have gone, and now it looks like I
might miss the one on the 27th too. Hopefully you'll see that '56 Chevy
truck my mom is so crazy about!
Don't know if all of you that read my updates know that MCG is going to
be renovating the children's oncology clinic. That is where I go see my
doctors in between chemo treatments for them to check my counts, get
blood and all that other time consuming check-up stuff I have to do.
Anyway, my Dad runs a big marathon every year (last year he finished the
one in Chicago). When he was at College of Charleston he would raise
money for his baseball program, but now that he's at Auburn he doesn't
have to do that. So, we want to raise money for the renovations at the
Hematology/Oncology Clinic. You can read about the renovation plans on
MCG's website, and you can read more about my Dad's plan at
www.runcoachrun.org.
I really want to raise enough money to get the clinic a blanket
warmer-with my name on it!- because patients like me get really cold
when we are there for a long time getting treatment. Thanks alot, and
thanks for always checking on me.
Posted Sept 20, 2008 12:39pm
Well i haven't been feeling too good lately so i didn't go to Auburn.
We'll probably go next weekend. my counts are pretty low too. So i get
to just chill at home till they come up.
Posted Sept
16, 2008
4:48pm
Well I got back Sunday, I feel okay kinda. but my counts are
probably going down. I go to the clinic tomorrow so that should be fun,
ha just kidding. This weekend we are going to Auburn for the LSU game. I
also started home bound today.
Well I believe I am going into the hospital today so my next update won't be until well I don't know when. Got to go pack.
Posted Sept 7, 2008 10:01am
I went to the Clemson game yesterday and it was fun. We won 45 to 17. The dermatologist think my rash is psoriasis. So they gave me some more creams to put on it, and I have to lay in a light box for 5 minutes three times a week for two weeks. Hopefully that will help it. My chemo is on hold until the rash goes away on my chest. Because the clinic can't access my port if the rash is still there. Well I'm feeling fine!!!
Posted Sept 4, 2008 2:27pm
I was supposed to go into the hospital yesterday(Wednesday) but they wouldn't admit me because of the rash I have. So tomorrow I am going to meet with the Dermatologist again. I think it will be the fifth time. They still don't know what this thing is. The biopsy results showed either an acute drug reaction or an early on-set of psoriasis. But my oncologist said there was no way that it could be psoriasis. So hopefully tomorrow they will figure it out. This weekend we might go to Clemson for the football game. I don't know yet.
Posted Aug 31, 2008 10:07am
Well hey guys, I'm in Auburn this weekend. We came down for the football game Saturday, and Christine and I are working camp today(31st ) and tomorrow. Then I'm scheduled for chemo on Wednesday for a 5 day in-patient round. So last Friday(29th) I had to go back to the dermatologist because the rash that I told you about came back. But it's worst than before. So they took a biopsy of it, which hurt. They numbed up one of the bumps with some cream, then they gave me a shot in it of lidocane, then they took this hole puncher thing and took off two layers of skin that had the red bump on it. They are expecting the results to be back Tuesday. Hopefully I will be able to go in the hospital on Wednesday. My birthday was good, and everything here is great.
August 19, 2008
3:39pm
I haven't been on in a
while and that is bad
because I just didn't
feel like it which is
kinda dumb considering I
feel fine. That is just
laziness on my part.
Anyways last Monday(the
11th) I went into the
clinic for a cardiogram,
that went fine, and
chemo. But then
they(people in the
clinic) sent me to the
dermatologist to check
out this rash I had on
my chest, arms, and
legs. It turned out to
be nothing, and it's
gone now, sorta. So then
I didn't have chemo on
Monday, I had it on
Tuesday and Wednesday.
Tuesday was not a good
day because I got sick(eww)
and Wednesday was ok but
not great. Now I feel
fine and my counts are
in the process of
dropping. I don't have
any plans for my
birthday because my
counts will probably be
low by thursday.
August 10, 2008
6:49pm
Well I just got home and
I had sooo much fun.
Hard Rock Park was fun
but it was shockingly
empty. Absolutely no one
was there. I asked the
lady at the entrance if
it was always like that
and she said "yep". It
was fun not waiting in
line. Saturday night we
went to the Alabama
Theater and saw this
show called "one". It
was really good.
Tomorrow I go get an
echocardiogram and have
chemo(outpatient round,
monday and tuesday).
August 7, 2008 4:35pm
Oh my gosh, oh my gosh, oh my gosh!!!!! Well in my last update I mentioned going to the beach. But not only do I get to go to the beach... I'M GOING TO HARD ROCK PARK!!!! I didn't think we were going to be able to go because on monday my platelets were only 53,000 and they have to be 100,000 to ride a roller coaster. So when I went to the clinic today Dr. Ameri said my platelets were 105,000(I nearly SCREAMED) and I asked him if I could ride a roller coaster and after he told us the story of how his cousin gave her third husband(she didn't really like that one) a heart attack on a roller coaster he said yes!!!! SO I'M GOING TO HARD ROCK PARK!!!! yayyyy
birthday: 8-21 =)
August 6, 2008 10:51 pm
August 3, 2008 8:48pm
Well I was supposed to go in for an out-patient round of chemo tomorrow(monday the 4th) but for some odd reason my platelet count just won't come up. My white blood cell count is fine. So I'm not sure when I'll be able to have that round. And my mom and dad are thinking about taking us to disney world over Christmas break. I think it would be soooo much fun!!! I'm pretty sure I'll be done with chemo by then so I won't have to worry about a hectic schedule. Well my birthday is almost here YAY.
Jul 27, 2008 11:24am
Well I know I haven't been on in a while so I'm going to fill you in. The week of the 14th I had chemo in the hospital and got out the 19th. So now I'm just waiting on my counts to come up. I feel okay but not the best. And I'm so excited for my birthday(aug. 21)!! I can't wait. ** I want to thank Len and The Casual Corvettes for my AWESOME model purple corvette!!! I LOVE IT ** For all the people thinking were moving to AL, I've lived just with my mom for seven years, were not moving away from North Augusta.
July 13, 2008 at 04:01 PM EDT
July 01, 2008 at 10:56 AM EDT
June 28, 2008 at 01:52 PM EDT
June 25, 2008 at 08:26 AM EDT
June 18, 2008 at 05:35 PM EDT
June 07, 2008 at 09:13 PM EDT
Well guess what! Chemo starts back on......June 16, but it is an outpatient round so only 2 days. A little bit earlier than I was hoping for but I'm ready to get it over with.
May 27, 2008 at 04:22 PM EDT
Well I start back on chemo in july. They said I have around 8 more cycles to go. So I'm halfway there.
May 21, 2008 at 08:56 PM EDT
OH MY GOSH!!!!! Today Dr. Hatley called!!! He had my pathology results!!!! So we found out that the tumor didn't have any cancer cells left, my ribs and the margins were clear, and NO RADIATION!!!! I AM SOOOOOO HAPPY! Prayers really do work. Thanks!!
May 16, 2008 at 12:51 PM EDT
May 14, 2008 at 04:16 PM EDT
May 09, 2008 at 07:55 PM EDT
May 03, 2008 at 04:53 PM EDT
April 30, 2008 at 08:58 PM EDT
April 24, 2008 at 05:45 PM EDT
** Drive by the Sno Cap on Saturday, April 26th! 4pm-10pm
** www.mrknickerbocker.com BUY SOME SHIRTS(even if you can't stand Clemson)!
www.mrknickerbocker.com
BUY A SHIRT AND SUPPORT ME!!!!!!!!!!!!!!! go to www.mrknickerbocker.com and click on FEATURED ITEMS
Check out my foundation page:
www.mlpfoundation.org
-Mary Louise
*Christine*
yesterday was pretty crazy so i didnt get a chance to get on here. MLP got her chest tube taken out yesterday morning! she was screaming so bad. you probably could hear it all down the hall. lol. It hurt pretty bad she said. also yesterday, mlp felt pretty bad. so it was a day-in-bed kinda day. today she felt even worse. but now she is feeling a little bit better. so hopefully by tomorrow she will be good again. i dont really know what else to add. but thanks to everyone who have been leaving messages and thanks to everyone who has brought mlp balloons and bears and foods and many of the various other things people have brought. seriously this room is getting a little cramped. there is tons of stuff in here. well thats all for now. adios!
its Christine, back reporting on mlp's day!
today mlp got her braces taken off!!! she's wasn't too excited though. She thinks that they are gonna mess up cause they were taken off a month early. I told they are gonna be fine! She is getting 2 retainers pretty soon, so they will be okay! They look gorgeous! They look pretty much just like mine! haha. Also today our grandparents from NY came down, along with our Uncle Mike (he thinks he is mlp's best friend. yeahhhh.)***oh, if you havent figured out already mlp stands from Mary-Louise. We all just call her mlp when typing. its easier.*** okay, back to mlp's day. Since I've gotten here its been pretty crazy. A couple of her friends came down for a little while to visit. GUESS WHAT?! Mary-Louise walked for the first time today! She went for a stroll around the hospital today! YAY MARY-LOUISE! she was quite excited! instead of using a walker to support her she pushes around a wheel chair! lol. mlp is staying positive through all of this. and whenever im around she just can't stop laughing! :) haha, well her friends being around probably is part of it too! well that's all for right now, that i can remember. Ill be back later! Until then keep sending messages! Mary-Louise loves them! Hey Mrs. Frazier! Thanks to everyone for all the support we really appreciate it!
love to all, Christine and MLP
that's right! CHRISTINE! :)
im back typing for ml louweezy. she didn't feel like doing this tonight and my dad is insisting on us updating this thing. here you go dad! here is what mlp is telling me to write: tonight im having a sleepover with Abby and Rachel. Brock is also over here just chilling for a little while. nothing else is going on right now. well my dinner is here. ill be back later. send me some love -MLP.
I LOVE YOU
*Autumn and Ryan--the lovely, colorful balloons
*College of Charleston--The beautiful flowers
*Mamaw--the adorable build a bear
*Rachel--the delicious rice krispy treats
*Mimi and Pop-Pop--the balloons!
*Uncle Mike & Aunt Lisa--Angel Bear & Flower arrangement
*The Weigles--the snowy/Brock bear!
*NA Middle School--the flowers
It was so thoughtful of all of you! They have made me feel so loved. I really appreciate it!
Mary-Louise
my bone marrow test in the OR was successful, but we don't know the results. and i have this stupid test tube inside of my body and it hurts like crazy! I can't wait to get this out of me. I'm not sure if i'm going to be able to go to new york in time but i sure hope we do. Leave me some LOVE!
Mary-Louise