Welcome
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*01/05/09
1:30pm This is Sarah (Mary Louise's mom) giving an update. I know that there are so many of you checking this page often for news, and I'm sorry I have taken so many days to post something new. Let me start by saying a heartfelt thank you to all that are making a difference in our lives and MaryLouise's status. First is God, responding to the overwhelming numbers of prayers being sent from all over by friends, family and those we don't even know. He is listening and answering in His own time. THANK YOU. We are especially thankful to all of you keeping ML in your thoughts, hearts and prayers. And of course the staff here at MCG-CMC who are working around the clock and putting up with our millions of questions and concerns. They are the BEST. MaryLouise continues to hang in there. Those of you who have followed these updates know of her love of rollercoasters. Well, she gives the term "rollercoaster ride" a whole new meaning. Her blood pressure is relatively stabalized with meds, she's on continuous dialysis, and respirator. The MDs removed some of the sedation beginning Saturday to try to assess her mental status. So far she is still very sedated and not very responsive...except when they give her a shot. She frowns, tries to say "OWW" and is totally our girl with attitude! But the newest development is acute liver failure, and they will be doing an ultra sound to take a look. We are praying that the failure is due to the sepsis that brought her in, not due to damage done by her chemotherapy. So, in a nut shell, ML is stable, fighting off multiple organ failure, but still able to frown and resist being moved just like she would be if she was wide awake. Thank you again for checking on her and passing her story along. Prayer chains work and we know that because she is still here today against most odds. *12/31/08 8:30pm Prayer Works! Hi, this is Sarah again. As many of you may know, MaryLouise was moved to another room and bed in ICU last night(Tues). While being moved ML's heart stopped, but with the quick action of this wonderful staff, ML was given CPR and her heart rate and blood pressure quickly returned to the same values as before the move. We knew that prayer works, and it definitely did at this time. Today(Wed), ML has stayed stable with the help of 7 different IV medicines to maintain blood pressure, several different antibiotics and blood products, and respirator for breathing. In all, she usually has about 15 different IV medicines going on at one time. Around 6pm MaryLouise was put on a dialysis machine to help her kidneys. So far she has tolerated this treatment well, and the plan is to run the machine 24 hours a day for a while, keep ML stable, watch and wait. THANK YOU ALL FOR YOUR QUICK RESPONSE TO MY PREVIOUS UPDATE, AND FOR SPREADING THE WORD OF OUR URGENT REQUEST FOR EXTRA PRAYERS. MaryLouise is hanging in there with the help of Our Lord, your concern and prayers, and the awesome efforts of the CMC PICU staff. Thank you. *12/30/08 7am Hi, this is Sarah, Mary Louise's mom. I have a not so happy update on MaryLouise. I took her in to the clinic yesterday, Monday, as planned. However when we got there first thing that morning, MaryLouise was not feeling well. Once they checked her temp and blood pressure, she took us all by surprise. Her blood pressure had severely dropped so the awesome nurses and doctors there paged the pediatric ICU team. By 9:30 yesterday morning MaryLouise was placed in the ICU here at the Children's Medical Center. It is now 7am Tuesday, December 30. MaryLouise has been sedated and intubated while the team here in ICU try to stabilize her blood pressure, lower her extremely high temp, and do everything they can to pull ML through this. She has what they call Septic Shock and she is in the fight of/for her life. I truly appreciate all of you who have checked in on her this past year. 14 rounds of chemo...wow. I also totally believe in the power of prayer and she REALLY needs all the prayers she can have lifted up. On a brighter note, she and the entire family had a wonderful Christmas. Thank you all for your well-wishes, prayers, gifts and thoughts of MaryLouise and her family. |
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*12/18/08 Its been a very busy week for Mary-Louise and her family. Currently, she is back in the hospital for her 14th round of chemo treatment and what we all hope will be her last. The plan is, out of the hospital on Sun or Mon and then rest, recover and then wait for Santa to make his visit. Many of you recall that last year Christmas was spent in the Hospital. Following the holidays, they will do full body scans and test will be run to determine where we are and decide the next plan of action. What a year for ML and for all of us. We all know, that there are many brighter days ahead! This past Monday 15th, we had a very important day as ML made a donation to the MCG Hematology/oncology clinic (Augusta Ga) where she is being treated and gets her counts checked. The clinic is going to purchase a blanket warmer and make some renovations. We want to thank all of you who have reached out to help with all your support throughout this battle. Many of you have contributed to the cause and we thank you so much. The money raised for the hospital donation was a wonderful idea that Mary-Louise had and we are glad that we could pull off something like that. From the Run-Coach-Run, individual contributions and different benefits and functions, we thank you. From the Pawlowski family to all of you, we want to wish you a very Merry Christmas and Happy Holidays. Will keep you updated and Have a great day. The Pawlowski Family. |
 From Left to Right: John, Jenny, Christine, Mary-Louise, and Sarah
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